A virtual reality smartphone app that gives users an immersive insight into the symptoms that people with dementia can experience in everyday life has been launched.
The app, called A Walk Through Dementia, was launched at a 3-day public installation at St Pancras International Station. The Android-exclusive app, available from the Google Play Store, was developed by Alzheimer’s Research UK and virtual reality specialists VISYON, and uses the Google Cardboard headset to put the public in the shoes of someone with dementia.
A Walk Through Dementia is voiced by actress Dame Harriet Walter and has an introduction from Channel 4 newsreader Jon Snow – both of whom had parents who had the condition. It is the first time a smartphone Cardboard app has been used to engage the public with the condition. The experience, which can also be viewed headset-free on the app or online at www.awalkthroughdementia.org, uses a combination of computer generated environments and 360-degree video sequences to illustrate how even everyday tasks can become a challenge for someone with dementia.
Unfolding over three scenarios, the user is tasked with buying ingredients, taking them home and making a cup of tea for their family. A supermarket environment reveals difficulties at the checkout, counting money, reading the shopping list, busy environments and finding items. A second street sequence illustrates problems people with dementia may face with navigation, visual-spatial problems and disorientation. Finally, back at home, making tea for visiting family presents challenges around memorising instructions, visual symptoms and coordination problems.
The app was developed with the help of people living with dementia, and with support from Professor Sebastian Crutch at UCL’s Dementia Research Centre.
Hilary Evans, chief executive of dementia research charity Alzheimer’s Research UK, said: “Dementia is commonly misunderstood, so A Walk Through Dementia is designed to offer the public a clearer picture of the challenges that people living with the condition face in everyday life. The app also gives a poignant insight into the emotional impact of symptoms, an element that people with dementia told us was important to achieve. Although each person with dementia experiences the condition differently, and it would be hard to recreate the full range of complex symptoms, harnessing new technology like virtual reality helps us engage people with the impact of dementia on a new level.”
Trina Armstrong, who is living with posterior cortical atrophy, a form of Alzheimer’s disease, and who advised on the project, said: “Anyone living with dementia will experience it uniquely, but I hope A Walk Through Dementia will provide people with an idea of what the world is like for me. Everyday things like popping to the supermarket or making a cup of tea are things I used to take for granted, but dementia presents a real barrier to my everyday life in ways that people often don’t realise. It’s been empowering for me to feed some of my symptoms and experiences into the app and see them re-created. I hope it will encourage the public to think differently about dementia and the people living with the condition they might meet.”
Snow added: “Having lost my mother to Alzheimer’s, and witnessed her struggle with the symptoms of dementia, it’s clear that the effects are far more complex and far-reaching than memory loss alone. A Walk Through Dementia gives an insight into how simple tasks we take for granted can become daily trials for people with the condition – there’s something about the everyday nature of the story the project tells that make it all the more affecting. Technology like VR can really transport someone to a different place, time or even give them a sense of what it’s like to live as someone else. I hope A Walk Through Dementia will help create some empathy for people living with the condition.”
Dame Harriet added: “I have had personal experience of dementia with both my parents but acting this character was the first time I had had to get inside the head of someone with the condition. It was daunting. I realised that I am not too young to develop this disease that we mostly think about as an old-age problem. I also realised that what seems incoherent on the outside comes from a human being trying to make sense.
“The character I play is at a tricky stage where she knows she is losing some of her faculties, and that must be terrifying. But the story also deals with the carers and people around her and talks of her family. Everyone is affected by this disease and each person's story is unique.
“I hope this little slice of life we have created will help people to understand some of the lesser-known symptoms, and increase their awareness of the emotional impact that living with those symptoms can cause. More people are likely to develop dementia in the coming years, so any attempt to add to our understanding of the nature of the condition can only be welcome.”